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Just Two of Those Days

Wednesday, 25 January 2012

There are the good days…and there are the not so good days.

Everyone has them.

But with a child on the autism spectrum, there are fewer good days. And the bad days… Well, they are pretty bad.

For example, today I overslept. I was awakened by Beernut, screaming at me that it was 7:10am. Screaming. Hysterically.

And why did I oversleep? Because two nights ago I was up all night. Because two nights ago Beernut was up all night. He is a pretty solid sleeper. Except for those occasions when he doesn’t sleep at all. I don’t mean that he had trouble falling asleep. I mean that he was up. all. night.

And don’t think that the Littles got a good night sleep with all of the commotion. Beernut is many things; quiet is not one of them.

So he was home with me yesterday. They all were. Home with me yesterday. They were too tired to be in school and I was too tired to get behind the wheel. Parenting three exhausted, grumpy children when exhausted and grumpy is a formula for disaster. It was a very. long. day.

Blissfully, they all went to sleep (mostly) on time and stayed (mostly) asleep throughout the night. But the stage was already set for another trying day.

And that’s the thing with Asperger’s. Or rather, that’s the thing with how Asperger’s presents in Beernut. There’s this great saying; if you know a kid with autism…you know one kid with autism. What appears in one person on the spectrum is not necessarily seen in another. It is a spectrum. With a broad range of behaviours, deficits, abilitites, etc.

Between the lack-of-sleep and the shock of oversleeping, Beernut was a complete and utter mess this morning. An Asperger’s mess. Screaming at the slightest provocation. Pushing anything in his way out of his way. Stomping. Slamming. Obliterating any sense of calm and quiet.

Needless-to-say, I sent a preemptive note of apology to the autism support teacher as soon as the bus pulled away from the house.

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4 Comments leave one →
  1. Debra permalink
    Thursday, 26 January 2012 10:40 am

    Chazak, chazak. You are an inspiration. I hope you have one or two different, much better kind of days coming *very soon*.

  2. Thursday, 26 January 2012 4:33 pm

    Sending hugs…

  3. Thursday, 26 January 2012 7:50 pm

    I don’t know how you feel about meds, but we found on those nights when the boys can’t sleep that a little help is a good thing. We had tried melatonin and it did nothing, so the neurologist prescribed something.

    Remember the old saying…three steps forward and two steps back is still a step forward. WE all have our bad days and our good days, and everyone goes through times when it seems that its harder than it should be. But one day you will turn around and realize that this too has passed and your child has grown in every way imaginable. PROMISE

  4. Saturday, 28 January 2012 10:52 pm

    I have AS and had one of those days yesterday. I can still feel the aftershock of it today. The easy irritability and the sensitivity to noise is pretty hard to ignore, but I think bad days and meltdowns become easier to deal with as an Aspie gets older.

    With Hope,
    Allie.

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