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Ongoing

Monday, 22 December 2008

Should it have been handled differently? Who’s to know. What I do know is that it is time to call in a specialist.

My two month anniversary was this past Shabbos. That’s how long I’ve had meningitis. I am, without question, much better than I was at the height of the illness. But I am in no way over it.

*headaches
*fatigue
*muscle weakness
*difficulty walking
*memory deficits
*nausea/vomiting

Just some of the residual problems. So my primary doctor has referred me to a neurologist. And I was really releived because I want my old self back.

Only it’s not that simple. The neurologist to whom I was referred is booked until mid-January. That is just not acceptable and the one lesson I have learned through all of this is that I am the only one who will advocate for me. So I rang back my doctor with the names of two other neurologists who came highly recommended to me and am waiting to get the OK from her.

I realize that there are only a certain number of workable hours each day but any doctor who is comfortable making a meningitis patient wait several weeks to be seen is not the right doctor for me.

To be continued…

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5 Comments leave one →
  1. Monday, 22 December 2008 7:15 pm

    Good luck finding a neurologist. My father just went to see one that he liked (he got a good report), but that’s in Somerset, New Jersey. A bit far for you.

    Keep up the self-advocating. That part of yourself is still strong (and necessary).

  2. Monday, 22 December 2008 9:27 pm

    hang in there and if you need someone to come out there and kick some neurologist butt, i’m your girl. plus, i think it’s warmer out there….not that i have ulterior motives or anything lol:-)

  3. Tuesday, 23 December 2008 12:02 pm

    The older I get, the more I realize how important it is to speak up. I now don’t let any of my family members deal with medical problems alone, especially if they are not feeling well. I know it may sound pushy but I have even accompanied my husband to doctors (in the room to ask questions) because otherwise he won’t ask. In a hospital situation it’s even worse. This week in Jerusalem a young mother died a few hours after giving birht to twins because the staff didn’t relate to her pain (after all eveyone is in pain after a c-section). Then it was too late.
    Absolutely, speak up and don’t take wait a few weeks, days or even minutes!

  4. Thursday, 25 December 2008 1:51 am

    I’m so sorry that you are still sick. Please keep us posted.
    Refuah shlemah.

  5. knittnkitten permalink
    Saturday, 27 December 2008 10:37 am

    Waiting lists for doctors are hell, hopefully you’ll get to see a good one soon.

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