Ongoing
Should it have been handled differently? Who’s to know. What I do know is that it is time to call in a specialist.
My two month anniversary was this past Shabbos. That’s how long I’ve had meningitis. I am, without question, much better than I was at the height of the illness. But I am in no way over it.
*headaches
*fatigue
*muscle weakness
*difficulty walking
*memory deficits
*nausea/vomiting
Just some of the residual problems. So my primary doctor has referred me to a neurologist. And I was really releived because I want my old self back.
Only it’s not that simple. The neurologist to whom I was referred is booked until mid-January. That is just not acceptable and the one lesson I have learned through all of this is that I am the only one who will advocate for me. So I rang back my doctor with the names of two other neurologists who came highly recommended to me and am waiting to get the OK from her.
I realize that there are only a certain number of workable hours each day but any doctor who is comfortable making a meningitis patient wait several weeks to be seen is not the right doctor for me.
To be continued…
Frume Sarah is Shabbos-observant -- in a Reform way, that is. Please note that from Friday afternoons until one hour after sundown on Saturday evenings, Frume Sarah will be unavailable, in observance of the Jewish Sabbath.
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Thank you for your understanding...and gut Shabbos!!! 
Frume Sarah's World 
Good luck finding a neurologist. My father just went to see one that he liked (he got a good report), but that’s in Somerset, New Jersey. A bit far for you.
Keep up the self-advocating. That part of yourself is still strong (and necessary).
hang in there and if you need someone to come out there and kick some neurologist butt, i’m your girl. plus, i think it’s warmer out there….not that i have ulterior motives or anything lol:-)
The older I get, the more I realize how important it is to speak up. I now don’t let any of my family members deal with medical problems alone, especially if they are not feeling well. I know it may sound pushy but I have even accompanied my husband to doctors (in the room to ask questions) because otherwise he won’t ask. In a hospital situation it’s even worse. This week in Jerusalem a young mother died a few hours after giving birht to twins because the staff didn’t relate to her pain (after all eveyone is in pain after a c-section). Then it was too late.
Absolutely, speak up and don’t take wait a few weeks, days or even minutes!
I’m so sorry that you are still sick. Please keep us posted.
Refuah shlemah.
Waiting lists for doctors are hell, hopefully you’ll get to see a good one soon.